Research

“The EVAN Foundation’s support for research has helped give many young patients two precious things, hope and time. When there is a cure for neuroblastoma, the EVAN Foundation will be part of the story.”

  • Yael P. Mosse, MD, Distinguished Neuroblastoma Investigator, Attending Physician, Children’s Hospital of Philadelphia, and Evan’s Doctor

The EVAN Foundation supports groundbreaking neuroblastoma research driven by innovative investigators at leading institutions across the U.S. The Foundation has awarded more than $750,000 in research funding through the following mechanisms:

  • Investigator Initiated Grants: Basic, translational and clinical research grants on neuroblastoma and childhood cancer have been awarded to: Children’s Hospital of Los Angeles, Children’s Oncology Group (Founding Partner, Project: Everychild), Children’s Hospital of Philadelphia, Fred Hutchinson Cancer Research Center, Memorial Sloan-Kettering Cancer Center, New Approaches to Neuroblastoma Therapy Consortium, Seattle Children’s Hospital, Texas Children’s Hospital / Baylor College of Medicine, Texas Tech University, Weill Cornell Medical Center and others.

  • Evan Lindberg Neuroblastoma Research Scholars Program, Children’s Hospital of Philadelphia: This unique initiative supports an exceptional early-career scientist in one of the world’s leading neuroblastoma research laboratories. Established in 2015, the Foundation has made a multi-year commitment to this program which helps cultivate the next generation of neuroblastoma researchers. Kristopher Bosse, MD is the current Evan Lindberg Scholar. His identification of a new protein on the surface of neuroblastoma cells (GPC-2) is award winning, published research that is driving the development of new drugs to target this protein.

  • Evan Lindberg Neuroblastoma Research Fund, Children’s National Hospital, Washington, D.C.: Through this fund, the EVAN Foundation has a made a multi-year commitment to support the work of Anthony Sandler, MD, Senior Vice President & Surgeon in Chief. Dr. Sandler and his team are working to develop a neuroblastoma vaccine derived from the tumor tissue of patients. As both a surgeon and biomedical researcher, Tony became motivated to pursue a vaccine after tiring of performing high-risk resections of invasive neuroblastoma tumors intertangled with organs in young children.

Partnerships: The Foundation has proudly collaborated with other organizations in the childhood cancer community in support of research, including; Solving Kids Cancer, the Catherine Elizabeth Blair Memorial Foundation, and the Band of Parents. The Foundation has also provided support for the biennial “Advances in Neuroblastoma Research” conference of leading international neuroblastoma investigators. Finally, Gavin Lindberg serves as a Parent Advocate on the following pediatric cancer research collaboratives:

  • National Cancer Institute’s Pediatric Immunotherapy Discovery & Development Network and NCI Pediatric Immunotherapy Network

  • NCI Pediatric & Adolescent Solid Tumor Steering Committee

  • New Approached to Neuroblastoma Therapy Consortium

  • St. Baldrick’s Foundation’s Empowering Pediatric Immunotherapies for Childhood Cancer (EPICC) Team

  • Cancer Grand Challenges KOODAC Team and NexTGen Team

To learn more about the Foundation’s research program, including acknowledgments in peer reviewed publications and current funding opportunities, please contact Gavin Lindberg at gavin@theevanfoundation.org.